It's hard enough having lots of cancers and watch tv when, regardless of the show, someone has cancer and dies.
It's hard for me to get excited about that kind of entertainment.
Plus, I have little control of my emotions anymore and cry over most anything now.
Watching a movie with Sarah, huge tears rolls down my face and I have to leave the room numerous times to collect myself. Needless to say I'm don't watch many movies anymore.
It's often the same scenario when we're out in public.
Too many social interactions leave me emotionally exhausted and physically drained, which leaves me with no energy for Sarah and Che.
We go out when we can, often forcing ourselves to, because it's safe inside the bubble we've built in our home.
Wonderful friends offer to visit, take me out, on a road trip, or even set up a band in the front yard for a live concert (which was done when I was first diagnosed with pancreatic cancer).
As marvelous as each of these are, the truth is I'm not emotionally capable of managing them much anymore.
It puts the onus on Sarah, who's already exhausted from 5 years of chronic caregiving to me, working full time taking care of 20+ Developmentally Delayed persons, and full time parenting, so we mostly stay inside of our bubble, even when we're out.
Life in our Bubble, as we call it, keeps me functioning a near normal life, most of the time.
It can get depressing and Sarah and I spend a lot of time talking about how NOT depressed we are!
"It's time to go," she announces, "and get this celebration of life back on track!"
Second grade ends for Che next week, a great milestone to celebrate, so we're taking the bubble on the road.
Actually, on a boat.
We sail on a Carnival cruise into the Caribbean!
I'd prayed there'd be the chance to do it again, with the Wonder of a Woman and our Love child, who keep me very much tethered inside this realm!
It's time to celebrate them!
And the fact that I'm still here to do it with them.
So for the first time in a long, long time, we're beyond excited and thankful as we party like it's the end of the world!
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If you'd like to help this celebration be everything it can be with drink packages, arcade money for Che, gambling money for Sarah or a special treat, no one deserves it more than them. Just click this link
https://gofund.me/ffda4f4b
