Da, is that what you're wearing to the dance tonight?"
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I'm dying as happily as I can, but I think I can to better.
See how by clicking the link this link
https://gofund.me/ffda4f4b
Thank you!
Captivating award winning author and nationally acclaimed speaker who is managing to remain a beach bum at heart.
Da, is that what you're wearing to the dance tonight?"
_______________
I'm dying as happily as I can, but I think I can to better.
See how by clicking the link this link
https://gofund.me/ffda4f4b
Thank you!
It's been a jam packed, exhausting day and she's so excited to finish work, get home and collapse from exhaustion.
"I'm a caregiver until he dies," I've heard her say, and I'm always taken aback at the reminder because it's coming sooner rather later.
And there's no real rest in caregiving.
It's 24/7 tangible expressions of love without ceasing until, suddenly one day it's over, I'm gone and Sarah has a whole other life to put together for her and Che.
Her caregiver days come to an abrupt halt, she's suddenly a window with a young daughter, living alone, starting over, late in life.
It's very much part of her thinking, because you have to have a plan, and Sarah is definitely a planner.
Cancer is infused in every aspect of our lives, but when I go, I'm taking it with me, and then Sarah and Che will be free of its daily raping of our time, energy, money and opportunities.
All of these things simultaneously rush through Sarah's mind, hearing the staff confide that his "brother has cancer and couldn’t take care of him ..."
She goes on, discussing the client's sad situation, and Sarah stands there smiling.
But that's everything going on behind Sarah's smile.
_______________
I'm dying as happily as I can, but I think I can to better.
See how by clicking the link
https://gofund.me/ffda4f4b
Thank you!
When I was on chemotherapy we went to Target, though I was much too sick to go but that's how we try to live. Act like everything's normal for Che even though it's clearly not.
Sarah guides me to a shopping cart for "people in need" and we carry on.
Through the thick clouds of cancer fog, I see people looking at me inquisitively.
"They're looking at my muscles," Sarah loudly laughs, pushing me down the aisle.
Che climbs aboard to ride with me.
We forget about everyone else as I focus all of my energy on enjoying bing out with my family, and not throwing up.
I'm no longer on chemo so I don't have to ride anymore, now strolling hand in hand with Sarah and Che. I'm slow and not always steady. When we're out, I'm focusing so much on "being in the moment" it seems I'm ignoring anyone or anything else. It simply takes all of my energy and focus to go anywhere, and I'm only good for an hour or so before I'm too exhausted and overwhelmed to carry on.
Consequently, I don't get out much anymore but when I do, my focus is on Sarah and Che and not much else.
Sarah asks if I want to go to Walmart with her and I'm up to it, so we make our way.
It feels good to be outside, almost normal.
I follow along as Sarah and Che meander throughout the store, a little overwhelmed by everything going on around me. People dart in and out of my view. Most are preoccupied with their own shopping, though some make eye contact and I either nod or look away.
A lady pushes her husband in a shopping cart past me, stopping me dead in my tracks, and I sigh at the inevitability of my own frailty.
At that moment Sarah grabs one hand as Che grabs the other, pulling me back into my safety zone.
Shoppings done, we check out and make our way to the car. After we get inside, the woman pushes her husband to the car parked beside ours. We watch as she struggles to get him from the cart and into the car.
"That's going to be us in four or five years," Sarah says.
I burst out laughing. "Four or five years?!"
Sarah laughs and drives us to the safety of home.
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I had no idea how hard My Celebration of Life would be but you can help at
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Falling into the sofa, I tell her no."
"For you," she tells me.
The music erupts from Alexa as Che positions herself across from me, looks directly at me with blue eyes the size of moons and she sings.
"If the party was over
and our time on earth is through
I'd want to hold you just for a while
And die with a smile"
I am stunned.
Che's pouring her heart into singing directly to me.
My eyes fill with salt water and I can barely hold myself together.
Lately, Che's been asking questions about whether or not I'm going to be around when she's this age or that.
"Dad are you gonna be alive when I'm 15?
"I don't know Baby," I shrug. "I wouldn't count on it."
She's well aware that I'm not always going to be here.
"I just want to hold you for a while," she sings, "and die with a smile".
She explodes from the chair into my lap on the sofa and hugs me tight for a long time. We laugh, tickling each other wrestling.
Sarah finishes her call and we move back to the table to be with her.
Right now, I'll take living with a smile and after I'm gone, I hope she remembers each of them.
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My Celebration of Life
http://gofund.me./ffda4f4b
You know how dogs can tell when you're sick, and they empathize, giving extra attention, affection and love?
I had no idea how hard it would be to have my celebration of life now rather than later.
I've been doing lots of reflecting.
I don't see any reason to have a funeral after I die. In this economy, it simply doesn't make sense. Besides I'm not a proponent of the Funeral Industrial Complex. So there won't be one.
Disposing of my body is a bit more of a challenge but we've got some excellent ideas.
In addition, I'm going to have my Celebration of Life sooner rather than later!
A party after I'm dead might be fun for everyone else but I wouldn't enjoy it very much.
So, I'm thinking my celebration of my life should take place while I can attend!
That decisions been made.
Now we're coming of with a "concept of a plan" which will be as spectacular as anybody else's!
That's the reflections so far.
More to, hopefully, come soon.
The Boat sways gently from side to side, slowly meandering its way across the Gulf of Mexico, so most people are sleeping soundly as they're rocked gently through the night.
I'm sitting alone in the darkness, waking and baking on the Aft deck of the Adult's Only section, sipping coffee while staring off into the giant black abyss.
If I stare hard enough, I can barely find the line where the Ocean ends and the sky begins, both shades of deep black.
There are no stars in the sky.
Not a single one.
It's an idyllic cruise, a marvelous gathering of all of my kids and grandkids, sans Cassidy, in one place at the same time for the sole purpose of being together, here in the middle of the Gulf Stream for Christmas.
It's easy to count your blessings when they're literally standing in front of you.
The magic moments were plentiful, memories were born in real time and both the spirit of Christmas and Jimmy Buffett's vibe made it all happy craziness.
We were showered with gifts before we even boarded and marvelously surprised by Joey Finch and ended up doing most everything we love in Key West.
It really was a perfect script for a Hallmark Movie with the family fun, drama and insanity that marks a good family gathering.
It's something I never thought would happen in my life yet, damn the context or circumstances, a Christmas miracle occurred for me.
It was dubbed "The Last Cruise" by some of the kids because the odds are heavily weighted in that direction.
Sarah's reaction was to book another cruise for when Che gets out of school.
"You need stuff to live for," she explains.
I laugh, like Sarah laughed at God when she learned Abraham was going to get her pregnant, at her age!
"Sometimes living's a struggle, multiplied double but they love it too much for the party to end," sang Jimmy Buffett shortly before he died.
I can definitely relate.
Keeping the party going, especially all of the way to end, is a most difficult thing to pull off!
I like thinking that Jimmy did.
My party's been a sputtering affair.
Major surgeries and two-and-half yrs of chemo took their toils on my body and it's harder to party when you can't stand up, are nauseated, focus is hard to maintain and energy is vertically nonexistent.
So it came time to make a choice: Continue with even more aggressive treatments or quit and party.
Our Cancer Specialist did not take the news well when we told him.
"Will you come back and see me?" he asked. "Can I call you."
Breaking up is hard to do.
To celebrate, Sarah decides we could use extra injections of love in the house, and as a marvelous destruction to cancer, we've been fostering puppies and, oh what a joy it's been!
But the party's never complete without the people you love the most, so in a spontaneous, miraculous, impulsive moment, Sarah makes invitations for the entire family to gather together for Christmas.
That's never happened since Sarah and I married and threw our families into a blender.
So this Christmas, all of the kids and grandkids, along with a sister-in-law, a nephew and his girlfriend, are joining Jimmy's holy ghost on the Margaritaville Cruise!
Everyone threw conventuality out of the window to make this happen.
"Look at it this way," we explained to the kids, "if everything goes well, it's one Hell of a Christmas party and, if I happen to die, everybody's together anyway so burial at Sea will be a breeze."
No one could argue with the logic, or the economics, of putting an equal strain on all parts.
It's going to be "Ho Ho Ho and a bottle of rum, Santa's run off to the Caribbean" with the whole family!
So my party's not over quite yet and, who knows, there just could be another Christmas miracle or two this year.
Fins Up and Happy Holidays to all!
At the Eastern Wharf Boat Parade, Che surprisingly asks if I'll have my picture taken with Santa and her?
"Of course," I answer, catching Sarah's eyes, and we both wonder where this is coming from?
So Sarah snaps our picture.
Later, Che and I are holding hands, laughing as we walk towards the river, when I trip and we both face plant on a crowded sidewalk.
In slow motion, I watch her watching me as we fall, still holding hands.
Eyes the size of full moons, stare straight into mine as she immediately ask if I'm okay, as I'm asking her.
My knee is bleeding.
She helps me up and we return to our seats.
Sarah inspects me, grabs hold of my arm and doesn't let go for the rest of the evening.
"Your days of walking alone are coming to an end Mr," Laurel quips, and I laugh at her prophesy.
I'm embarrassed, cold and feeling extremely old.
Under the soft glow of the Christmas Tree lights, hours later when everyone's asleep, I'm reflecting on these things.
It's hard to keep winning battles when the war's being lost.
A rustle interrupts the silence and, out of the darkness and into the light, Che shuffles in with her blanket over her head.
"What are you doing up?" I exclaim at 5:10 in the morning.
"I want to be with you Da," she softly says, laying down in the chair beside me.
And I am filled with tidings of great joy.
Maybe even some peace too.
For now anyway.
Because now's all we've got anyway.
"Most people have about 6 months and for you it's been 4-and-a-half years," Sarah explains and her words linger in a pregnant silence.